56-year-old Celine Dion struggles with stiff person syndrome and is eager to return to the stage | Literature City

Celine Dion, 56, isn’t sure when she’ll perform again, but she’s trying: ‘My body will tell me.’

When the time comes, Celine Dion will return to the stage.

In a new interview with French Vogue, the 56-year-old singer admitted that she suffers from “stiff person syndrome” and revealed her thoughts on when she can start performing again.

“I can’t answer that question… because for four years I’ve been saying to myself, I’m not going back, I’m ready, I’m not ready,” Celine Dion told the outlet . “At this point, I can’t stand here and say to you, ‘Yes, in four months: ‘Yes, in four months.’ I don’t know… what my body will tell me. On the other hand, I Don’t want to just wait. Every day is hard, I’m working very hard and tomorrow is another day. But one thing never stops. That’s the will. That’s the passion. That’s the determination.”

In late 2022, Celine Dion revealed that she had been diagnosed with Zombie Syndrome, a rare, incurable neurological disorder that causes muscle spasms that, according to the Zombie Syndrome Foundation, It is debilitating and affects the central nervous system, especially the brain and spinal cord.

An insider told People last year that Celine Dion is “doing everything she can” to get healthy enough to perform live performances again. In an interview with French Vogue, she talked about her daily battle with the disease and how she strives to “be the best version of herself.”

“I haven’t beaten it yet because it’s still in my body and will always be there. I hope we can find a miracle and cure it through scientific research, but for now I have to learn to live with it. This is what it means to live with zombie syndrome now I’m sick of it,” she explained.

“Five days a week, I receive exercise, physical and vocal therapy. I work on my toes, knees, calves, fingers, singing and voice,” Celine Dion said. “I now have to learn to accept it and stop questioning myself. I start by asking myself: Why me? How could this happen? What did I do? Is this my fault?”

Celine Dion, who last toured in 2020, rescheduled many of her shows following the outbreak, but the rescheduled shows were later canceled due to complications from her diagnosis of stiff-person syndrome. cancelled.

“Life doesn’t give you any answers. You just have to live it!” added Celine Dion, whose health journey will be featured in the upcoming Prime Video documentary “I Am: Céline Dion.” ) recorded in.

“The way I see it, I have two choices. Either I train like an athlete and work my butt off to recover; or I rest and it’s all over and I stay at home and listen to my songs and stand in front of the mirror and sing to myself, ” she continued. “I choose to devote myself to my work, from head to toe, working with the medical team. I want to be the best version of myself. My goal is to see the Eiffel Tower again!”

Why Wearing a Coat on Stage at the 2024 Grammy Awards: Wearing a Coat Makes Me Feel Better

Celine Dion looks back on her style over the years and talks about the mustard yellow Valentino coat she wore to an awards show.

“In February of this year, she made a surprise appearance at the Grammy Awards. “It made me nervous, but it was also an honor. “The magic. The excitement. Seeing the fans, seeing the audience. Seeing show business again.”

For the five-time Grammy winner (who was styled that night by celebrity stylist Law Roach), the coat served an emotional purpose in addition to fashion – Xi Lyn Dion told Vogue that she feels better when she has something to hold onto when she’s on stage.

“I was like, ‘You can walk on stage in a coat? Oh, yes! You can do whatever you want in the fashion world, have a great time, wear that coat, own that coat, go for it’,” she recalled. “It made me feel better for a moment,” she recalled. “I could hold on to the coat and hide myself from these little things.”

She then sang lyrics from her 2019 song “Imperfections.” “So, we did it”.

She has only made a handful of public appearances on awards show stages over the past few years. She appeared at the Crypto.com Arena in Los Angeles to present the Album of the Year award – the first time she won the award 27 years ago – with her 23-year-old son René-Charles Angélil by her side. Around her, the audience was star-studded, and the audience stood up and applauded.

“It took a lot out of me. But my son Rene Charles came to support me. It’s an honor to give Album of the Year to Taylor Swift because she’s enjoying She’s having the best time of her life and I’m the one giving her the award,” Celine Dion added. “”But when you get a standing ovation, it’s always very, very touching. “

An insider revealed to PEOPLE the elaborate planning surrounding Celine Dion’s appearance at the Grammys.

“It was an amazing night for her. She did a great job and hopefully she can continue to do more and lighten things up a bit,” the insider said of Dion, who chatted with Swift after her appearance. Swift posed for photos backstage.

“Everyone was interacting with her. She had a great moment with Oprah and did a duet with Stevie Wonder. They were just joking around,” the source said. Victoria Monet Victoria Monét also stopped her and everyone was so gracious.”

During the interview, Celine Dion wore pieces like a white leather trench coat by Jacquemus, a top by Schiaparelli and a huge pink wool coat by Alaña to discuss How his style has changed over the course of his decades-long career.

“I wouldn’t say I collaborated with designers because that would be too pretentious,” she told the magazine. “On the other hand, I can say that throughout my life my mother has been sewing me tights, sweaters, Coats and gloves, all the little things I wear in the winter. I’m lucky because I have 13 brothers and sisters and I get heirlooms from everyone.”

“After my first English album was released, I was able to buy designer clothes and I started reading fashion magazines,” she continued. She talked about her early career after releasing her first English-language album, Unison, in 1990. “…I bought myself a Lagerfeld jacket, just like people buy themselves diamonds.”

Celine Dion recalls how wedding tiara landed her in hospital: ‘It was so stressful’

When Celine Dion married René Angélil in 1994, her exquisite tiara made a lasting impression – and not just because it was encrusted with 2,000 Swarovski crystals .

In an interview with Vogue, she recalled how the eye-catching tiara, which reportedly weighed seven pounds and was “sewed” onto her head, landed her in the hospital.

She said that at that time she felt confident that she could “bear” the weight of the headdress. “When you are so happy, there is no weight, no problems, no pain,” she said. “

She went on to explain that before her wedding, she practiced walking the red carpet in her full wedding dress and everything was going fine…until she arrived at the cathedral on the big day and discovered that the floor was carpet instead of her rehearsal Wooden floors.

“My face immediately changed,” joked Celine Dion. “I started walking, and I was like, ‘Can I still walk?’ Will I be able to walk to my future husband? ‘But like I said, I’ll run to you. I did it. “

That night, Celine said everything went “very well” and “people were happy,” but when she finally took off her tiara, she found she had a scratch on her head “because of the stress.” “

She didn’t really realize she was injured until the next morning. “When I woke up the next day, I looked at myself in the mirror. There was an egg-sized egg in the middle of my forehead.[凸起],” she recalled, before teasing, “I looked at my husband and I said, ‘It’s too late now, we’re already married. “

Celine Dion said the goose eggs were “so big” that her eyes looked sideways. “I thought, ‘Okay, let’s go see the doctor,'” she said. “I had to take antibiotics for about three weeks.”

But even with a bump on her forehead, Celine Dion wouldn’t change a thing about her wedding day. “This moment will stay with me for the rest of my life,” she said. “No wedding dress is ever big enough. I could have worn a dress three times the size on my head. I could have worn six different dresses that night because he was and is such a wonderful person. (Anguer in 2016 “He brought out the best in me,” she added, “and he really did. “

Documentary “I Am Celine Dion” will be released soon

The upcoming documentary I Am: Céline Dion on Prime Video details the Canadian superstar’s iconic career and recent diagnosis with stiff-person syndrome experience.

Amazon and MGM Studios have announced that the highly anticipated documentary about the Canadian star, I Am Celine Dion, will premiere worldwide on Tuesday, June 25.

In addition to announcing the release date for the upcoming documentary directed by Irene Taylor, the first still from I Am Celine Dion has been revealed, which is shot from the side with her hair pulled back of. Dion looked in high spirits in the photo as she raised a powerful fist.

The official synopsis describes “I Am Celine Dion” as “a love letter to her fans” and “a raw and authentic behind-the-scenes look at the iconic star’s battle with a life-changing disease.”

The film also “highlights the role music has guided her life while also demonstrating the tenacity of the human spirit.”

When the upcoming documentary was announced in early January, Celine Dion issued a statement in a press release. She said: “The past few years have been a huge challenge for me, from discovering my condition to learning how to live with it and manage it, but not let it define me. On my path to resuming my acting career, I realized how much I missed being able to see my fans and during this time of absence I decided to document this part of my life to try to raise awareness of this little known disease and help others with it. People with the same diagnosis.”

At the time, the songstress posted a video on Instagram to open up to fans about her condition, which affects the central nervous system and can cause “excessive stiffness, debilitating effects,” according to the Stiff Person Syndrome Foundation sexual pain, chronic anxiety”.

Months after announcing her diagnosis, she also decided to cancel tours for the foreseeable future in order to focus on her health.

Celine Dion says children’s love was gift to her battle with zombie syndrome

Céline Dion was diagnosed with stiff-person syndrome and relied on her children for support.

In an interview with French Vogue, the 56-year-old singer was asked what has helped her most when dealing with the syndrome. “The most important thing is the love of my family and my children, the love of my fans, and the support of my team,” Celine Dion said. People with stiff-person syndrome may not be lucky enough to have access to good doctors and good treatment. I have the ability and that is a gift. “

Celine Dion has 23-year-old son René-Charles and 13-year-old twins Nelson and Eddy, whom she shares with her late husband René Angélil.

In May 2023, a source told People that when Celine Dion had to cancel all tours until April 2024 after being diagnosed with stiff-person syndrome, her sons became “Her light”.

“Her main focus has always been her son and the show. She is the most selfless and caring person,” a source told People. “Celine Dion loves her sons so much. They are amazing and they give her all the support and love she needs.

Nearly a year later, Celine Dion shared a photo on Instagram posing with her three sons to commemorate International Zombie Syndrome Awareness Day on March 15, 2024.

She wrote in the caption in English and French: “Struggled with this autoimmune disease has been one of the most difficult experiences of my life, but I remain determined to one day return to the stage and live as normal a life as possible. I deeply Deep gratitude to my kids, family, team and all of you for your love and support!”

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